Another day in the journey
Jun. 25th, 2020 04:54 pmToday was easier in some ways and harder in others.
I had gotten myself a little too hopeful in regard to my expectations for meeting with a neurologist yesterday. I was hoping she would have clear ideas of what is going on with me and be able to develop some sort of treatment plan. She did have a good theory about what's been going on with my face, and that was reassuring in its way. But she had no real feedback regarding what's going on with my legs. That was frustrating. However, she did order a test to check the nerve function in my legs, so that's reassuring in that I can tell myself while I wait the month for that test to happen that it's most likely nerve pain.
I keep telling myself over and over that everything I feel is somehow related to nerve function. The feeling of swelling without swelling. The tingling. The pins and needles. The muscle tension. The feeling of weakness in those muscles. The way it feels like the muscles around the area seem to be compensating. Sometimes it works, and sometimes the anxiety wins out.
I think the hardest part of all of it is feeling like I'm so consumed by it. I can't be fully present with my daughter. And that makes me so sad. I feel like I can't play with her because I might somehow exacerbate whatever is going on. It would be fine to be stuck mostly at home and unable to do most of the summer things we would usually be doing if I could just feel PRESENT. But instead I don't do things with her... I take her to the sandbox but I don't really play. Instead I do stupid things like try and use the warm sand as heat therapy for my legs or I get obsessed with how my legs look instead of making a sandcastle. I feel like such an asshole. Some weird self-obsessed version of a parent. It's depressing. I get wrapped up in thinking about this bodily bullshit and can't be present.
I just want this medical shit to be figured out. I want it to resolve. I want to stop worrying that I'm developing some weird terminal disease that's going to spread and kill me. Or that I've got some weird sort of blood clotting disorder in my legs that's going to give me a sudden stroke one day. All of this makes me feel like a basket case.
I wish I knew what I could do to be proactive... having to sit and wait is SO HARD.
I had gotten myself a little too hopeful in regard to my expectations for meeting with a neurologist yesterday. I was hoping she would have clear ideas of what is going on with me and be able to develop some sort of treatment plan. She did have a good theory about what's been going on with my face, and that was reassuring in its way. But she had no real feedback regarding what's going on with my legs. That was frustrating. However, she did order a test to check the nerve function in my legs, so that's reassuring in that I can tell myself while I wait the month for that test to happen that it's most likely nerve pain.
I keep telling myself over and over that everything I feel is somehow related to nerve function. The feeling of swelling without swelling. The tingling. The pins and needles. The muscle tension. The feeling of weakness in those muscles. The way it feels like the muscles around the area seem to be compensating. Sometimes it works, and sometimes the anxiety wins out.
I think the hardest part of all of it is feeling like I'm so consumed by it. I can't be fully present with my daughter. And that makes me so sad. I feel like I can't play with her because I might somehow exacerbate whatever is going on. It would be fine to be stuck mostly at home and unable to do most of the summer things we would usually be doing if I could just feel PRESENT. But instead I don't do things with her... I take her to the sandbox but I don't really play. Instead I do stupid things like try and use the warm sand as heat therapy for my legs or I get obsessed with how my legs look instead of making a sandcastle. I feel like such an asshole. Some weird self-obsessed version of a parent. It's depressing. I get wrapped up in thinking about this bodily bullshit and can't be present.
I just want this medical shit to be figured out. I want it to resolve. I want to stop worrying that I'm developing some weird terminal disease that's going to spread and kill me. Or that I've got some weird sort of blood clotting disorder in my legs that's going to give me a sudden stroke one day. All of this makes me feel like a basket case.
I wish I knew what I could do to be proactive... having to sit and wait is SO HARD.